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Epidermolysis Bullosa: A Rare Genetic Disease

Remember when you were a kid, and you were told not to touch a butterfly’s wings? If we did, it was believed they would never fly again due to the fragility of their wings. Children with Epidermolysis Bullosa (EB) are often called “butterfly children” because they have extremely fragile skin. There are different classifications of …

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What is Ichthyosis?

Skin conditions can be challenging to narrow down because the symptoms can be similar between them. More than 16,000 babies are born each year that have ichthyosis (ik-thee-O-sis). Ichthyosis is a disfiguring skin condition that causes numerous medical complications. The children and adults affected face low self-esteem and depression as a result of their highly …

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